Welcome. I'm Bart Rupel, husband, father of two great kids, and to make ends meet an engineer.
My son, Matt, was diagnosed in 2004 with Friedreich's Ataxia, or FA for convienence. FA is a progressive neuro-muscular disease that robs a person’s ability to coordinate their movements. This eventually leads to full time wheelchair use and…
There is hope though. Some very hard working people have gotten us close to finding a cure for FA. This effort is spearheaded by FARA.
In 2007, Kyle Bryant, a young man with FA rode his recumbant bicycle 2,400 miles to the annual national ataxia conference in Memphis, TN. Along the way he raised $40,000 and generated a lot of publicity.
In 2008, Kyle is going to ride 600 miles to the conference in Las Vegas, NV. I’ve decided to join him for half the ride, starting in Bakersfield, CA.
Sunday, March 23, 2008
Tehacahpi to Boron
Very tired now must sleep. 50 miles first 30 down hill, then a suprise bonus climb. Finally 20 miles into the dry desert wind.
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